Best of Living

June 12, 2013

girls relay

The lump in my throat swelled as we rushed into the front gates of that stadium. Fans all yelling for teams running around the track, excitement thick in the air.
I see the blue & gold colors flash by as our girls team place in this race of whole state. Believing is to Be Living.

And more tears well in my eyes as we are witness to the first wheelchair race in history at a high school level. Claire cheers as they go by, my heart soars with hope knowing there is a chance she can compete one day.Believing is to Be Living.

A weekend in Columbus full of the accomplishment of many young athletes and coaches too as our own coach is honored for years of dedication to this sport of track & field.Believing is to Be Living.

 
Then to see medals placed around the necks of a poised team of four boys also dressed in blue and gold. United they are. Proud parents we are. Hard work and determination to achieve their own piece of history. A race to a set goal, just shy of reaching the record they stand on the podium to shine smiles that melt hearts. Moments to cherish, smiles to remember, races to show that Believing is to Be Living.

track

And today marks six years of racing with determination,faith and goals that were said to be impossible. But a special little soul has never quit running,never quit believing…She is six years old today.

bday6

Claire6

Happy Birthday Claire! Thank you for inspiring me to believe because the best comes when you decide to not just believe but to be living.  Be Living full in the moments God has blessed us with. Believing is to Be Living.

beliving

Quote from Ann Voskamp @ www.aholyexperience.com

Claire’s Birthday Pictures by Kaptured by Kelly

Days Like This

March 18, 2013

Nearly 7 months later we show up to a large exercise room with therapists that have become like family.

That’s how it is in a world of special.

You can find a familiar love in unlikely places. Like doctors offices, hospitals and physical therapy exercise rooms. Where braces, walkers and total gyms are excitedly anticipated after a long break off, needed time away from physical work outs since seizures stole progress away. But, we brave the risk of over exertion, tired seizure attacks and happily meet up with familiar friends that also happen to be an important part of making her world a more mobile place.

It’s hard work for her when she returns. She moves muscles that are not willing to. She says “I can’t do it” to her therapy friends and they say “We won’t hear the cant word”. She says, “it’s hard” and again the response is encouraging,

“I will ask you to do hard things, but you have to work hard to grow”.

She smiles big and puts her head down to focus on those weak muscles and with determination there is ever so slight movement in tired places. She smiles even bigger knowing she can even through the hard.

We all need days like this, hard but necessary. Working through hard to grow more.Grow more into less of who we think we are and grow more into who God knows we are. It takes hard days like these to see weakness in muscle slowly progress to the places of strength that only God knows exist. We need to journey through hard days to discover a strength that results in living full,simple peace.

God grows hearts through hard days…

clairesharddaysharddays

Hello God…Hello Butter

Scars Bared

November 26, 2012

Her shirt off and scars bared, no care in the world, only reading. Or imagining or just plain living in a world of five years old. She has learned far more than doctors diagnosed. She would be blind, deaf and unable to speak are words that echoed in my mind for awhile. Until she started to live, breathe and overcome or hurdle over all that stood and stands in her way.

A much needed breath of thanksgiving , after a holiday seizure tried to steal it away.

There in this morning sun, she reminds me of hope, hope for days of joy, peace and a love that transcends all understanding.

It is God here in this morning. God that shines through her naked, scarred body to read words that only she can see. Oh how grateful I am for these everyday miracles, smiling small moments of brilliant light. God’s light through her. Small moments big …Moments of Hello God Given Miracles…Hello Butter

1000 gifts…adding this and still counting…







 

© 2012 hellobutter

SUPERGIRL~CLAIRE

January 29, 2012

Miracles happen! Short but sweet video of our amazing supergirl!

 

 

“Unspeakable,unending,thanks be to God…”

Living Thanksgiving

November 23, 2011

 
 

Thanksgiving

Thanksgiving is a time for reflecting on being grateful. Every year I list all I am thankful for praising God for His blessings in my life. Its a long list and a heartfelt prayer of thanksgiving.

I wonder…Is it enough? Is it enough to just say thank you and praise God? On the rainy days life is sure to bring, will  just saying the words of gratitude, be enough to find the sun despite  the falling rain?

This Thanksgiving I will continue with my list of blessings and praise God for all the gifts in my life. However, I will not be satisfied by this act alone. I am working on keeping the attitude of gratitude alive in my heart everyday.

I have hard days when the rain wins and the sun disappears.

I am convinced if my heart is full of grace, not by mere words, but attitude and actions of gratitude I will not only find sun in the midst of rainy days, I will feel Grace from the Son. Then His love will be enough.

Ann Voskamp is an author I had the pleasure of hearing speak last summer. She writes: ” Because Thanksgiving is more than a holiday-its the way to wake up to really,fully living” This idea to live fully and give thanks for all things is what I want to be planted deep into my heart. 
holy experience 
Living Thanksgiving in every moment.

I am celebrating His Grace this Thanksgiving by action and attitude so then I can say, goodbye to hard rainy days &…Hello Butter

Read more about Claire’s current health @ http://http://www.carepages.com/carepages/babyclairespage/updates

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