Celebrating Seven!

June 12, 2014

claire's bday2

“Happy Birthday Claire,” I whisper to her as she wakes to greet her seventh year of living the miracle that is her life. She smiles immediately and says “Am I seven?” And so begins her happy day of  birth.

But the truth is, I don’t celebrate this day. Birth day  is a bitter sweet memory.On that day I was happy,but the medical professionals were not. I was positive,but the  medical professionals were not. I cried tears of joy when I saw her sweet little face, and medical professionals reminded me that my joy would be fleeting…her life would be short lived.
Seven years later I sit in full view of the miracle before me. I fight the haunting of those days and choose to see all the happy of this day. She is the gift of this day, she is the joy that prevailed. She is the reason our lives have been made whole. We can’t listen to horror stories,or dismal words of a medical world that sometimes does not believe that God is bigger than any of all this.

claire's bday3

Truth be told I don’t celebrate Claire’s “birth day.”

I celebrate the very first breath that she was never supposed to breathe, I celebrate each and every moment of the life that God has placed in my presence.  I celebrate a life that was never supposed to be of quality.  I celebrate her full beautiful life today,because there are no guarantees of what tomorrow holds…that is what makes today and everyday a very precious celebration.

The truth about today is that I celebrate Claire’s life just as any other day and I see her proving that God is bigger than any of all this.

And as she fell to sleep this evening, she was smiling still, asking “Am I seven?” I said, “yes,you are seven.”  Closing her eyes with a sleepy smile she whispers “seven.”

Hello God in the celebration of today and the sleepy whispers of a growing miracle…Hello Butter

 

 

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Scars Bared

November 26, 2012

Her shirt off and scars bared, no care in the world, only reading. Or imagining or just plain living in a world of five years old. She has learned far more than doctors diagnosed. She would be blind, deaf and unable to speak are words that echoed in my mind for awhile. Until she started to live, breathe and overcome or hurdle over all that stood and stands in her way.

A much needed breath of thanksgiving , after a holiday seizure tried to steal it away.

There in this morning sun, she reminds me of hope, hope for days of joy, peace and a love that transcends all understanding.

It is God here in this morning. God that shines through her naked, scarred body to read words that only she can see. Oh how grateful I am for these everyday miracles, smiling small moments of brilliant light. God’s light through her. Small moments big …Moments of Hello God Given Miracles…Hello Butter

1000 gifts…adding this and still counting…







 

© 2012 hellobutter

SUPERGIRL~CLAIRE

January 29, 2012

Miracles happen! Short but sweet video of our amazing supergirl!

 

 

“Unspeakable,unending,thanks be to God…”

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