epilepsy is an enemy

June 24, 2012

Epilepsy has no cure.

A heart crushing reminder as I helplessly watched Claire suffer another seizure last night. While I do all I can do to aid her during these cruel attacks, I still feel helpless. I gave her the emergency med under her tongue, I made sure her airway stayed clear, I monitored heart rate and breathing…all I can do, all while I prayed.  An hour and a half later she was her smiling self again, but my ache for her to be cured was tangible.
Normal days of happy come to a screeching halt because of this disease.Every fairy tale has an enemy. Seizures are Claire’s ugly monster she will battle her whole life. Our Rainbow Princess is courageous and strong enough to fight this battle. Along with being surrounded by love, faith and soldiers of God. We will be her aid, as God can work through us. He has a plan for her life. However, it is not to be free from seizures. So we will battle on, living with so much joy and love in hearts that there will be no room for an enemy. And though it seems my heart is heavy today, I am really standing strong against an enemy that I refuse to let rob us of our happy ending.In our Kingdom a rainbow follows every drop of rain,no matter the size of the storm we see His light shine through her life.

I will fear no evil, for my God is with me and if my God is with me whom shall I fear?”  (Matt Redman~You Never Let Go)

 I would have loved for the plan to have been to say good-bye forever to seizures, instead we will say hello to strength, faith, courage, love…most of all

Hello God

 

 

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15 Responses to “epilepsy is an enemy”

  1. shirley rosser said

    Hello God from me too, and from all of us that follow your postings, and love Claire.
    I cannot imagine your pain, but I think I understand your feelings….. I just know because of you, Claire has the best of the best for love, and family.

  2. That was beautiful. Your faith is inspiring. I know how hard it is to stay strong on a rough day. One of hardest parts of epilepsy for me is watching my son struggle from day to day, and to constantly worry about his future.
    Barbara

  3. Maggie said

    God bless you. One of the hardest parts of epilepsy for me is never knowing when a seizure will strike. I will pray for your family.

  4. Pam said

    I’m so sorry that you’re doing it all over again. I pray you find His strength perfect.

    Epilepsy, or no, though…Claire is one beautiful little girl! Growing so much.

  5. Janice said

    She does look like a beautiful little rainbow. Sorry to hear she had another seizure but so thankful she has you as her mom that stays strong and is there to help and love her so much. Claire and you are both such an inspiration to the rest of us. Take Care and will keep your family in my prayers.

  6. Brenda said

    CONTINUE TO HANG STRONG…AS YOU SAID..IT IS IN GOD’S PLAN FOR ALL THESE SOMETIMES PAINFUL TIMES. TO US IT SEEMS SO UNFAIR FOR ANY CHILD TO GO THRU WHAT YOUR FAMILY HAS OVER THE YERS. BUT THE GOOD TIMES HAVE BEEN SO GOOD AS OF THIS PAST YEAR! KEEP UP YOUR STRENGTH…AND KNOW YOU HAVE SO MANY WHO CARE,..EPECIALLY GOD !! LOVE YOU TINA ♥

  7. I will add lovely Claire and her strong mum in my prayers. That’s all I can do. Please Tina, don’t lose your faith, you don’t know how much you are helping us now…

    • Mirella,Conoscere Dio è più grande di tutto questo rende il mio cuore pieno di fede! Vivere gioia oggi grazie 🙂 e benedizioni a voi per le vostre preghiere e amore!

      • Nice Tina that you wrote in Italian! Let’s keep on having faith. Last night also Nicolò had again seizures after the first seizure-free 16 days in the last 3 years. Now we start again counting from day zero.

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