June 10, 2012
Her eyes lit and smile shined as she wrapped open arms around him. Excitedly she whispers, “I misted you” and he glows with deep love for his sweet baby sister. My eyes “misted” as I lived this moment in full joy. It was one of those times in life that captures not only heart but soul. Knowing that these siblings may have never met this side of heaven.
This was not our first visit to Cape May. Five years earlier as we tried to process the grim facts of Claire’s diagnosis we landed close to that same stretch of ocean. My five month pregnant self needed to feel the calm of the sea, hoping Claire would also feel the peace. Looking back to all the swirling emotions,I never dreamed we would re-visit the ocean with Claire by our side.
So, having her play in the sand and seeing her hair kissed by the breeze was a full circle moment. This time was not only a celebration of our son’s accomplishment it was also a revelation and testimony to the power of love and trusting a God who has planned our tomorrows. Being able to see the past of uncertainty come into the presence of a “misted” embrace can only be described as God. No words can do justice to a God moment, not only this one, but all of life as He orchestrates, past, present and future.
Tuesday will be Claire’s fifth year of living miracles. I remember her first days in the NICU as we gazed at her beauty,asking Bryan “do you think she will ever be able to smile, do you think she will ever know who we are?” and God answered…
© 2012 hellobutter
Linking here today www.gettingdownwithjesus.com
July 23, 2011
Hello Butter has hit the road.
We are in North Carolina for a women’s conference called She Speaks. If you’ ve followed me long, you will know how much I love this weekend. I love the people I meet, but better yet, I love how God shows up at this event.
Claire has been doing so well, that she was able to travel with me again this year. She has been talking about it for weeks because she gets to hang out with her Wendy Pope! She loves Wendy! She was so excited and kept asking ”am I going to hold her and hug her?” I think she has said her name 1,000 times a day for weeks. So, she has got to have some Wendy time and I believe she could have Wendy hold her all day for many days! Claire has truly sparkled as she wheels around in her chair saying “hello” to everyone,she enjoys being social!
We packed a cooler with her ketogenic food and so far the diet hasn’t been too much of a hassle. I am finding we adapt pretty well, even if you have sticks of butter in your suitcase.
The diet is definitely easier to maintain while in the comforts of home and the routine of life in our livingroom, but now its nice to know we can also spread our wings and take Butter on the road!
So, today we are saying goodbye to the comfy couch & tv…. & Hello Butter